2/2/23
(after waiting 6 weeks) I spoke with Dr. DiLauro stated I believed I had rectal prolapse as I saw it and I felt 6 months pregnant and no matter what, even after using every laxative I could get my hands on I could not use the restroom, I was nauseated, lethargic and in pain. The Doctor told me it might be my pelvic floor and completely shut me down when I told him I think I had a blockage because not only did I see it, I felt it. It was terrifying . He basically ignored me and said he was going to get an approval for a colonoscopy. That it was not urgent and was up to me. I'm thinking, "not urgent" Umm I just told you that I haven't used the restroom in a month- like nothing! He prescribed Linzess and told me to drink Miralax . I said what if it doesn't work, I had tried EVERYTHING. He said, "It will." then proceeded to send me on my way without any physical examination whatsoever.
3/13
I continued to be in massive discomfort, unable to use the restroom. I informed the doctor, so he upped my Linzess dosage after telling him how ill it made me and he prescribed a massive jug of laxative that tasted like a mixture of ocean water and sewage. I had to drink 8 oz every ten (10) min along with an enema that took all day- which I wouldn't have cared if it actually worked!
3/21/23
It wasn't until EIGHT DAYS later and after sending several messages to the other staff members that I was finally told to go to the ER. The doctor chimed in MUCH later to concur with his staff.
3/22/23
After TEN (10) hours of waiting in the ER, long story short, after telling my story and having to start from scratch every time a new nurse, NP or Doc came to see me, all of them with different opinions on my problem, of course. They wanted to give me a huge enema I told them it wouldnt work and they did not believe me. In the end I took to prove I had a very serious problem. They continued to run tests While running multiple other tests. They could see tha I was literally full of "sh*t and the look of horror on their faces when those huge enemas did absolutely NOTHING. Well, they mmediately admitted and I had to drink THREE more jugs of Go Litely aka sewage water, THREE.
That morning they took me down for the colonoscopy. When the NP was trying to put me to sleep the meds felt like battery acid in my arm. I cried in pain and I have a high pain threshold. She felt my arm and said, "it's hot. Oh, honey it's not even in your vein."
Because of all of these delays. A MONTH on Dr. DiLauro and Coastal Gastroenterology end the referral they promised they sent to UCSD as "urgent" and then another TEN (10) day delay before replying to me when I told Coastal Gastroenterology that UCSD had not received the fax. They had the audacity to put the blame on UCSD saying their fax wasn't working right and they were "finally" able to get ahold of them and then acting like a hero saying don't worry I made sure they know you have been waiting a long time and this is urgent. When I talked to UCSD, (Which btw they answer right away when you call- every time, so 10 days is a blatant lie), the broken fax was a lie and they told me Coastal Gastro DID not put it in as "urgent." She read it to me on the phone-They fully discredit Coastal Gastro's statement.
Because of Coastal Gastroenterology and Dr. DiLauro "delays" I'm being told I can't see a doctor until JUNE FIFTH.
Dilauro's response:
Hi Kelly,
I apologize there has been frustration in obtaining a consultation at UCSD. We have faed all of the essential information and the UCSD MD triage team has been able to get you an appointment June 5th. Unfortunately, I have no control of their scheduling process and furthermore, it is the only location that accepts your type of insurance.
Dr. DiLauro
He straight up lies or he does not take the time to discuss important matters with his staff. UCSD is not to blame. I was told by USCD that nothing was ever sent a month ago as promised. The fax only came in after a half dozen emails from myself
and 10 additional days of waiting before Coastal called them, once again throwing UCSD under the bus. Wrong. I had been in touch with UCSD and knew the real story. Furthermore, UCSD was horrified when I told them what was going on. That;s when she read me the fax that magically had JUSTcome in...there was no "urgent" on it. The UCSD staff member was incredibly warm and felt horrible about the treatment I received from Coastal and Dr. DiLauro.
When I shared this with Dr. Dilauro, after begging him to make this right- His response was, "Thank you for your feedback." Wow, are you kidding me?
More of the timeline:
4/29
DiLauro stated I had been referred to UCSD as "urgent."
5/3
I was told again that the "urgent" referral had been sent. I called to ask because UCSD had not received it.
4/15/24
I was still waiting for this fax to go through (I still had not been able to use the restroom since my nightmare of a hospital experience... read more