I will try a second time to post my experience with Dr. Lawton. My first was not recommended most likely because the events of 2013 were very difficult for me and it read like a rant. I want to start by saying that I was referred to him by head of neurology at Mercy Dignity Health in Sacramento. By all accounts I went to the best neurovascular surgeon on the west coat and arguably the nation. My condition was multiple spinal AVMs since the age of 12. With a new one now threatening me in my 50s, the plan was to try to correct it internally with an angiogram or have open surgery the next day. I felt at the time I was in good hands at both UCSF and with its surgical team.
I met members of the surgical group fall of 2012 at which time they outlined what will take place. First an angiogram to either correct AVM or map it for a surgery the next day. It was scheduled for May of 2013. During those six months I met with the radiology team prior to the angiogram and tried repeatedly to meet with the surgical team unsuccessfully. On Thursday, May 23, 2013 I entered UCSF for the angiogram. My expectation was that someone would talk to me afterwards and explain what they did and/or why I would need surgery the next day. That never happened even though I asked repeatedly during my overnight stay and only managed to find out the surgeons name, Dr. Michael Lawton. Friday the day of the surgery I expected a huddle with my surgeon and he was nowhere to be found. 6.5hrs on the operating table, I woke up in recovery and still no Dr. Lawton. In ICU I learned on my own that my legs were now paralyzed from the waist down and still no Dr. Lawton, only residents who were very sheepish about saying too much. This continued until Tuesday the 28th when after taking the Memorial Day weekend off he appeared with residents in tow to meet me for the first time. Four days of not knowing if this paralysis was temporary or the new normal! I remember I walked into UCSF, but I wasn't walking out. To add insult to injury, two of his residents originally told me after surgery that my surgical site was more extensive than anticipated and the result would most likely be an unstable spinal column in need of future plates and wires. All untrue. Dr. Lawton tried to explain weakly that it was the holiday weekend, but this was not an emergency surgery and he had chosen that date. He apologized for both his inattention and for his residents mis-speaking. My spine would be fine...although yes, I was paralyzed.
Ten days later preparing to be sent to an acute rehab facility, I developed a pulmonary embolism from my immobility. After the fact, I have learned that it could have been averted through the use of blood thinners as a precaution. The impression I formulated was that there was some rush to surgery on a case UCSF itself told me amounts to 200 cases in the population nationwide. Fortunately, it was not life threatening only extremely painful for weeks.
After a month between UCSF and Mercy Acute Rehab in Sacramento I went home having made a lot of progress. On July 18th, 2013 I suffered a devastating set back. I had developed swelling of the protective layer surrounding the spinal cord. I lost almost all gains leaving my left leg paralyzed and my right weak and painful to this date. The condition is called Adhesive Aarchnoiditis (AA) and it is not curable and its progressive. Its the luck of the draw on spinal interventions. I was just unlucky. In a way it was preventable had Dr. Lawton taken the time to sit with me prior to surgery and discuss the dangers, the options, the long term outlook, something. I may have chosen another path or agreed to the surgery. I will never know, because in a rush to operate, with poor communication I wasn't given a choice. There is no doubt he is a master surgeon, top in his game, but I am whole human not just a spinal AVM sufferer to be presented at the next conference. To his credit, he did call me personally in the fall of 2013 to see how I was. We had a long talk and agreed there could no more surgery for me. I wish he had been this communicative prior. read more