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    Duke Triangle Heart Associates

    3.3 (3 reviews)
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    Duke Spine Center

    Duke Spine Center

    2.1(10 reviews)
    1.8 mi

    Care is wonderful! Very sympathetic staff. Quality experts and worth the trip. Need to use valet…read moreparking or you will be walking a mile. Flat price of $16 but worth it.

    I had an appointment scheduled for more than six months with Dr. Karen Jones in Duke Neurosurgery…read more I traveled from Hawaii at very significant financial, physical, and emotional cost for this consultation. Prior to the visit, Duke had access to over 40 pages of medical records, imaging summaries, neurological evaluations, and supporting documentation regarding my medically complex condition, including genetically confirmed CMT2A2, prior cervical and lumbar fusion surgeries, severe chronic pain, and progressive neurological decline. Despite this extensive preparation and the length of time the appointment had been scheduled, I never actually saw Dr. Jones. I was seen only by a nurse practitioner, who informed me that based primarily on the most recent MRI imaging I brought with me, there was "no surgical target" and nothing Neurosurgery could offer. At no point during the six months leading up to this visit was it clearly communicated to me that the entire consultation outcome would depend almost exclusively on direct review of one recent MRI disc rather than the extensive records already submitted. I repeatedly expressed concern before traveling that I did not want to come all the way from Hawaii if my case was not considered appropriate for the department. I was never told that the consultation might effectively be ruled out based on the interpretation of a single MRI study. I was later told that this had supposedly been communicated through MyChart, but I never received such a message. The interaction itself was deeply distressing and lacking in compassion. I was already emotionally overwhelmed due to repeated referral difficulties within the Duke system and the extreme burden of navigating complex medical care while in severe pain. Rather than receiving guidance, continuity, or referral assistance, I felt abruptly dismissed. No meaningful next-step referrals were offered during the visit despite my medically complex history and the fact that multiple physicians in Hawaii, including my neurologist and primary care physician, believed further neurosurgical evaluation was appropriate. I was particularly distressed that nerve conduction studies and neurological findings from my treating physicians appeared to be brushed aside without serious discussion. My understanding from my neurologist was that chronic nerve compression below my lumbar fusion remained a significant concern, especially given the limitations of imaging interpretation in the presence of spinal hardware. I also found it upsetting that my BMI was highlighted prominently in the chart despite being only slightly above the "normal" range. In the context of a patient presenting with severe chronic pain, neurological disease, prior fusion surgeries, and significant functional decline, this felt unnecessary and shaming. By the end of the encounter, I was emotionally devastated. I had already requested a social worker before the appointment because I feared how emotionally fragile I had become during this process. The social worker who later met with me witnessed the severity of my distress. My concern is not simply that surgery was declined. I understand specialists may disagree on treatment options. My concern is the way this process was handled: the lack of transparency before travel, the absence of direct physician consultation after such an extensive wait and preparation process, the dismissive tone of the interaction, and the complete lack of coordinated transition planning or compassionate referral guidance for a medically vulnerable out-of-state patient.

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    Duke Triangle Heart Associates - cardiology - Updated May 2026

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