Planning for the end of a life is painful and difficult, but Horizon made my father's last few months a little bit easier and for that, my mom and I are forever grateful.
When my father was given a terminal diagnosis and a dementia diagnosis on top of that, I became his advocate and caregiver. I received a lot of conflicting information from our doctors about when we should reach out to hospice, whether palliative care was worth our time, if we should sign a DNR, etc. Horizon wasn't the first place I reached out to or engaged; I spoke to another hospice and while very informative, they lacked the follow through we sought. More than once we fell into a black hole where calls and emails went unanswered. They also hadn't sold my mom on their services; maybe it was timing, but she felt pushed too far out of her comfort zone as it pertained to electing to stop curative treatment and other difficult decisions.
When my dad's meds stopped working, there was no question it was time to engage hospice. I reached out to a few providers and was immediately impressed at Horizon's responsiveness. I filled out a web form early one Saturday and my phone rang less than 15 minutes later. Working with a non-profit hospice appealed to me as did their inpatient unit at Rush (midway between my house and my parents).
Our social worker, Amy, was wonderful. My mom liked that she and our nurse, Kathy, lived in our community; they were very familiar with the local services available to us and never pushed us to make decisions we weren't ready to make. More than once Amy made herself available to us when she thought we might need support. When changes would agitate my dad, like the presence of oxygen tanks, Amy and Kathy helped us figure out how best to calm him. In my dad's last few hours, before we knew as much, Amy helped us think about what we wanted for my dad and she and Kathy helped guide us to keeping him safe and comfortable at home.
My parents were skeptical about some of the services Horizon provides (masseuse, art and music therapy, etc.); I think some seemed too granola for them, but my dad quickly adapted, wishing his massage therapist could come every day. Horizon was responsive to our needs; emails and phone calls were returned quickly, medications and equipment arrived promptly and the folks staffing the 24-hour hotline were always friendly and patient, even when we were tired and panicked. The folks at AdvaCare, their equipment partner, were very kind and efficient as well.
Horizon's engagement with our family didn't end when my dad passed away. Our nurse and social worker reached out to express their condolences. Our nurse also wrote a very kind note on the staff card we received. Additionally, we were notified of the support services available to our family in the wake of my father's passing and I've received at least one check-in call since his passing.
As I said, end of life planning is painful and difficult, but having an organization like Horizon to lean on helped.
* Horizon has merged with two other area non-profit hospices - Midwest and JourneyCare. read more