I was diagnosed with hemangiopericytoma brain cancer in April 2014. Four months earlier, I had noticed a large "bump" on top of my head, just above the right side of my forehead (just inside the hairline). Because it is so rare for a brain tumor to present in that manner, my internist thought it was a Lipoma or cyst that formed on top of my head and not inside the brain.
But, after four months and the "bump" was growing larger, I went to my dermatologist. She attempted to do a biopsy, just to be sure what this thing was on my head. The "bump" was so hard, she was unable to get the biopsy needle in far enough for a good biopsy.
She sent me to a Moh's surgeon to have this thing looked at. The Moh's surgeon was Dr. Bruce Nelson. Just prior to Dr. Nelson coming into the examination room to see me, there was a knock on the door and it was the nurse bringing a copy of the biopsy report that had just come in.
The biopsy report stated that the bump was a "Lipoma". No problem!
A few minutes later, Dr. Nelson came into the room and looked at the bump on my head and at the biopsy report. He said "This biopsy report is wrong. I don't know what this bump on your head is, but I do know it is not a Lipoma. I will not touch it until I see an X Ray showing that this bump is only on top of your head and NOT inside the brain, in which case you will need to see a neurosurgeon ."
So, I got an X Ray and yes, it was inside the brain. The Hemangiopericytoma tumor went through the bone just inside the scalp. It was one inch long and one & three quarters inches wide. A few days later, an MRI showed the tumor started in the Superior Blood Vein beneath the bone, apparently, in the lining of the Superior Blood Vein. I was very fortunate, that this tumor grew up and out of my head, and not down into the brain.
I was sent to a neurosurgeon at Houston Methodist, who told me that Dr. Bruce Nelson may well have saved my life by not believing the incorrect biopsy and attempting to remove the supposed "Lipoma". My neurosurgeon said he had witnessed several doctors who did attempt to remove what they thought were either Cysts or Lipoma's growing on top of the head, only to realize too late that they were actually formed inside the brain. Then, the doctors immediately call for a neurosurgeon to come and stop the bleeding before the patient bleeds to death. You just have to hope the neurosurgeon gets there in time and is able to stop the bleeding, etc. Thanks to Dr. Nelson, I avoided that scenario!
In April 2014, I had brain surgery and then, radiation. So far, I am still "good"! And this is March 2018.
I can't say enough good things about Dr. Nelson! This doctor helped save my life! read more