Sadly, we have had a horrific and tragic experience with T. Boone Pickens / Faith Presbyterian…read moreHospice. At this point, I would be fearful of the level of care (neglect?) they are giving to their hospice patients who do not have a voice to advocate for themselves in their final weeks or days.
This negative review is long and detailed because I don't want anyone to have to go through the experience they put us and my mother through. I hope it is helpful to other families going through such excruciating end-of-life decisions for their loved ones.
We were on the waitlist for the "next available room", just awaiting transport, for my dying mother who is in terrible pain after fracturing both hips and a femur (simultaneously). After being told at her final assessment on January 19 that transport would "very likely be tomorrow", there was an abrupt change. They canceled the required Covid test they had scheduled for immediately before transport, and suddenly nothing was available. Every day for five days. Strange, because a friend had his mother admitted that second day. First red flag of their deception.
Ultimately, after five days and no response other than terse texts each day saying "still no room, should be tomorrow", we learned from their team that they LOST their license to be able to provide inpatient hospice care! This was Tuesday, January 24, 2023.
(What??)
After that call, they ghosted us. We could not get a return call, text or email from anyone, trying daily.
Meanwhile, my mother is still in terrible pain at an assisted living that provides no help. And because of her terrible pain, her Alzheimer's suddenly declined tremendously, immediately after the injuries. She is a shadow of herself and suddenly does not recognize me or the rest of her family. Up till the day of the injuries, she lit up when I walked in the room, greeted me enthusiastically, and spoke to me and her (private) caregivers. Now she sits in pain with her eyes closed, and when she does open them, there is zero recognition there. She isn't eating, is barely drinking, and is not getting the pain control medication she needs--in fact, which we were told by their nurses is "urgent." It's tragic.
Out of desperation, we finally contacted corporate management and, after their initial shock and promises to "get to the bottom of it right away", we learned the truth. In a one-sentence text (!) the next day, they stated that they "can no longer meet my mother's needs."
(What?!??)
She had been assessed, accepted, and we were merely waiting for an available room, "any hour now", since January 19. We were told they would call me when transport (ambulance) was ready. Literally overnight, they suddenly "can't meet her needs?" The definition of Hospice is to care for a dying patient. What "needs" can they suddenly not meet?
After that, once again, we have been completely ghosted. We have learned that several patients have been admitted to inpatient in the subsequent week, and we cannot get a return phone call or even a simple explanation.
After my initial reaction of fear and denial when her doctor recommended Hospice (and wrote and order for it), and then the T. Boone Pickens / Faith nurses and sales team convinced us by explaining how badly Mom needed to be there "to get the medication and care she needs", I am heartbroken and helpless thinking of her condition now and her constant, untreated pain that she will suffer for her remaining days.
The facility is physically beautiful. LOTS of money has been spent on a pretty building, nice fixtures, an attractive entrance, nice artwork--nothing the patients care about or need. It is just a lot of smoke and mirrors for prospective families during sales appointments. But it is painfully obvious that is where their priority is. Not the patients. Not the families. This sad fact is echoed repeatedly in other reviews.
My assumption, since we can't even get the decency of an explanation, is that they have shifted to accepting only the private pay "Residential" patients (at $12,500/month) while leaving patients desperately awaiting hospice hanging alone in agony.
We knew T. Boone Pickens. In fact, my parents bought his condo in Turtle Creek (and lived there for 12 years until assisted living). He would be rolling over in his grave if he knew what is happening at his namesake facility.
Anyone who would like to know more or share advice (esp after the anticipated contradictory response here from their staff) can reach me by looking at my profile.
