My husband was admitted to Saint Anthony Hospital twice within a short period of time. During his…read morefirst admission, I believe he was discharged prematurely. Shortly after returning home, he suffered a seizure and had to be readmitted for further treatment.
As the parent of a child with cerebral palsy, I have spent more than 13 years navigating complex medical systems and advocating for a loved one's care. Throughout those years, I have worked with countless physicians, nurses, social workers, and hospital administrators. Because of that experience, I do not make complaints lightly.
What I found most troubling during my husband's stay was the lack of empathy, professionalism, and, most importantly, communication. My husband was in an extremely confused and cognitively impaired state, yet members of his care team repeatedly discussed important aspects of his treatment directly with him despite clear signs that he was not able to fully understand or participate in those conversations.
I repeatedly asked the staff to contact me directly regarding his plan of care, procedures, medications, and next steps so that decisions could be made based on an accurate understanding of his condition. Those requests were largely ignored. Instead of partnering with our family during a very vulnerable time, there seemed to be a significant breakdown in communication and care coordination.
I do want to recognize the first social worker, Jackie, we worked with. She took the time to get to know us personally, understand our situation, and treat us with compassion and respect. Her approach made a difficult situation much more manageable, and I am grateful for her support.
Unfortunately, our experience with the second social worker was the complete opposite. Rather than working collaboratively with our family to ensure my husband received the level of care he needed, she appeared focused on discharging him as quickly as possible. Despite our repeated concerns that he required additional long-term support and care, we felt pressured throughout the discharge process. At one point, a homeless shelter was discussed as a discharge option, which was both shocking and deeply upsetting given his medical condition and vulnerability at the time.
Patients and families deserve compassionate care, clear communication, and confidence that medical decisions are being made with their best interests in mind. Instead, we often felt unheard, dismissed, and left out of critical conversations regarding my husband's care. For a hospital that serves such a vulnerable population, this was incredibly disappointing and concerning.
I hope this feedback is taken seriously so that future patients and families do not have to experience the same lack of communication, coordination, and empathy during an already difficult time.