It's such a sad experience that happened here at IF peds. My daughter was born IUGR and I had great concern about it. I expressed that to our Doctor, Dr. Webb and was met with little concern. It was a "it will either get better or worse" whenever things were brought up to him. My daughters L eye started bulging out at 2 weeks I saw multiple providers there because of my concern... all met with nothing, no further testing, no concern or curiosity despite my multiple attempts at requesting help. I also informed them that I knew something was wrong with my daughter and this feeling would not go away I requested genetic testing that was an absolute fail on IF peds part. They gave me the QR codes to call in to get prior authorization. Me not knowing how this process went, called and was quickly informed (also met with laughter) that only a physician can call. The incompetence followed and her testing was never processed correctly despite my multiple calls to my provider informing them of this information. A swallow study was finally issued (not from my pediatrician) from IF peds but not done by a pediatric specialist... they found nothing. Well it ended up with my daughter spending 22 days at PCMC in Utah to get the help she needed. We found out she has 4q syndrome, is blind in one eye and may have potential vision in the other. This condition is degenerative and it pains me to think if only we could have acted sooner. She had untreated jaundice, elevated liver functions and a biopsy was performed, did a swallow study at PCMC and was found to be aspirating while feeding (was only 6 lbs) so gaining weight was a huge concern that was grossly mishandled by the incompetence of IF pediatrics. The most disheartening was that the doctors at EIRMC and PCMC had no labs or previous information to go off of due to the lack of care from my primary physician (someone who's job is to ease concerns and make us feel safe). This halted a lot of progress for us in getting my daughters medical needs treated quickly. I will never go to IF pediatrics again and wanted to share our story (we are currently still at PCMC) so that no other parent will be made to feel unheard or dismissed. Thankfully EIRMC heard my concerns and took action and we are now getting the help my daughter should have received read more